Equals 12 if my math is correct. It also happens to be my pain level. In no way am I inflating that number in any way.
Today was normally a day that my husband was suppose to work; however because of the economy, his hours have been majorly impacted. He was to only work this afternoon. My pain clinic appointment was at 12:15 so I encouraged him to go to work...get the hours while he can because I knew I wasn't going to get an injection. It's too early to get another injection so I would be able to drive back home myself. Seeing how hard it was for me to even walk out to the car, he followed behind me to the clinic and then helped me get inside the hospital. It was extremely painful to take that short walk to the door, but with his help, I made it.
When the little receptionist at the clinic walked me back to the treatment room, she saw what a struggle it was to walk. She told me to lean on her. I laughed through my tears and told her that I would "squish her" if I leaned on her, but thank you so much for offering. After waiting for an hour, the doctor saw me first ahead of the other patients waiting there for injections. He said that more than likely other nerves have been irritated in addition to what already was inflamed. He said he was going to give me the 3rd injection today, knowing that it was my only resort of trying to get relief. He gave it to me in the traditional way that has helped in the past.
When I was taking a shower before going to the clinic, I honestly was at the lowest point of my entire life. The pain was beyond what I could handle. I told the doctor that if today was my son's wedding, there would be no way that I could have gone. Can you imagine missing my own son's wedding because of spinal stenosis? The doctor said that we just can't let that happen. He said to double up on the Dilaudid, stay on the steroid and if that didn't work, he would prescribe Oxycontin and Oxycondone....one of those being a "booster" or "breakthrough" for the pain. He also said that he may want another MRI to see what is going on with my spine. I'm scheduled for a MRI on July 23 at UVA for my pancreas so he said that he may call down to the surgeon and see if he can get a picture of my spine through that same MRI. I forget that I have pancreatic cancer. It certainly has taken the back seat to the nerve pain. How can that be? Ironic how this is all happening.
Getting an injection today meant that I now couldn't drive home. I called a friend who immediately dropped what she was doing to come to my rescue. She's been there many times for me in the past years. She was there for me again today. I certainly needed her strength, both emotionally and physically.
The pain slightly lessens after taking the double dose of Didaudid but only lasts for about a hour before it's right back up again. It certainly doesn't last the 4 hours between doses. I'm giving it until tomorrow but then will call for the stronger medication. I'm trying to be a patient person.You would think that so much pain medicine in my system would make me sleepy. No such luck.
I don't know what to ask for anymore. I don't know what to do. Since coming home from the pain clinic this afternoon, I can't even find a comfortable position in bed. I am trying hard to not cry so that I can get a mental grip over this pain. I've prayed as hard as I can pray.
Reading my blog has become nothing but a downer for everyone. I promise that when I can go back to just having pancreatic cancer, I will be so much more positive!
6 comments:
Sharon, please,- Your blog is not a downer. Since I am so reluctant to call, in case you are resting, it is the only way I can feel connected to you. Call me if you need help or just anything. I would come up in a heartbeat, even for a cup of tea with you. Love you. CJ
Sharon, I keep racking my brain trying to figure out the purpose of all your suffering because it sure feels like there should be some reason for all this pain, some life affirming insight, some sign that everything is going to be okay. But, try as I might, I haven't figured out any reason at all. It's just not fair, Sharon. Life just isn't fair. If it was, you'd be spending these last few weeks until Gregory's wedding laughing with friends, lounging in the pool, not battling cancer and not enduring unbelievable pain. I am so sorry, Sharon. You have been dealt much more than your "fair share" of challenges this last year. Sadly, I have no idea how to relieve your pain, I have to leave that to the professionals, but I send you a long distance hug and lots and lots of love and prayers. I dont know when or how, but the pain WILL lessen, and you will attend that wedding! That much I know for sure.
Love you,
Rosemary
Dear Sharon,
I'm praying and begging the Lord to give you relief from this pain! My heart is hurting for all that you are enduring right now.
Please keep sharing your struggles with us. Don't fight this battle in isolation.
Darla
Dear Sharon, I'm so sorry for all this pain you are enduring and dealing with cancer on top of all this just seems too much. Our prayers are with you everyday I just wish there was more we all could do for you. I hope knowing how much you are loved by so many eases your heart a little. Sending you a gentle hug.
Michelle McG
Sharon,
Continue to take one day at a time. Continue to place your trust in God. Continue to allow all of your family and friends to shower love upon you. Continue to ask for help from your giant circle of caregivers (we are all poised and ready to help however you need). Continue to feel all the hugs that are sent your way every single day. Continue to stay strong. Continue to have hope. You are amazing and you WILL come to the end of this very difficult journey and we will all be there with you as we have from the beginning.
Many, many hugs,
Rita
Sharon,
Your blog is far from a downer! I join Rita is sending hugs and a shower of love. Allow this pain to bring you closer to God as you ask for the strength to endure.
My prayers are with you my friend,
Amy
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