Left home at 7:30 a.m. and didn't get home until after 4:00 with MANY fun filled activities to fill the hours in between.
Started with lab work, saw the doctor, had oxygen evaluated with finger oxygenizer, went for a chest x-ray, returned to the doctor, had chemo, had 4th thorocentesis, came home, oxygen delivered, got sick while oxygen men were teaching us about system, called after hours doctor because pain out of control, went to sleep.
My lab work allowed me to receive the last dose of round 2 chemo. That's a great accomplishment because it seems like chemo may be the only way to get control of this "lung thing" that is going on.
Thorocentesis is becoming unsuccessful, with only 20 ml. of fluid drained. The fluid that is in between my lung is becoming like a "honeycomb", although the radiologist said there wasn't a whole lot of fluid to drain. Why the intense pain then in my back?
My doctor was very involved yesterday with what is going on with me. When I thanked him for helping me, he said that the pain that I'm in is not acceptable and not to thank him until we figure out what's going on to cause this pain and cause the lung incidences.
I now have 2% of oxygen on a 24 hour basis. While it is certainly helping to get my breathing under control quicker, it doesn't take away the struggle. I have been prescribed a medication to help my diaphragm relax. Hoping the combination of the two make moving a little easier.
I was able to up my medications last night to help with the pain. The increase certainly helped to take the edge off and allow me to get some much needed sleep. It also allowed my husband some much needed sleep. He was at the edge of his rope last night. He has literally not sat down in 3 days, doing all of the house chores, yard work, grocery shopping, and 500 other countless things he has to make our life run. He has picked his fingernails to bleed and is in pure exhaustion mode. I ache for him.
Please give my husband a special place in your prayers today.
3 comments:
Sharon,
You, Butch and your entire support team are always in our prayers - every single day. Never worry that we'll forget those closest to you. We know that it is hard to sit back and let others do for you, but you must, Sharon. You need all of you strength and energy to be focused on fighting this battle. So let them help. God has surrounded you with His angels to do his work. Ask them for what you need. Then let them get busy. Butch is definitely one of those angels... but I know there are many more out there just chomping at the bit to help.
Sending much love,
Rosemary
Hi Sharon,
Thank you for sharing the details of your VERY long day. Please continue to put words to your experience and feelings. You are loved by so many people. We count it a privilege to share in your successes and your struggles. Butch is loved and held up in prayer right along with you, Sharon. Your fight is his fight!
Sincerely,
Darla
Ecclesiastes 4:9-10
Two people are better than one,
because they get more done by working together.
If one falls down,
the other can help him up.
Sharon & Butch,
You both are in our prayers daily. We pray that these hard days will be over soon and you both can get some peace to rest. Stay strong like you have been and know that so many of us are sending you love.
Michelle
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